Somewhere on the coast

You know, when I first set up this blog I was expecting it to be a lot easier to go out and make these quick posts. In my head, I was going out once a week, getting a set of photos and creating a blog post weekly. I haven’t even come close. Something always gets in the way, or more realistically, I just get lazy. But writing daily is good practice, which is why even now I try and write something, even if its not for here every day. Especially as a below average writer it helps to just write a lot.

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I think the other problem with me making these is that I forget to take photos on these drives (or I just choose not to). The drive has always been more important to me than the photos. And even less posting the photos has been the smallest priority. I like the drive because it gives my mind space to run but not so much get away because I need to focus on driving as well. Being still and thinking just moves my thoughts all over the place in a random mess where no thought is every fully completed. Driving gets it right where I can focus on a single idea or thought at a time. Not really letting me jump around in my own mind. I think that’s why I like driving so much. On top of a lot of other reasons like the music, the speed, the views and just the overall freedom to go out and not be stuck inside.

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For these photos I think I only had one focus, to get some nice sunset photos of the Martin Beach rock structure. It was the first time I was up there for sunset. Usually its not worth the drive to here risking a bad cloud day. I just found myself attracted to this place for this day. Once I got there it was just like I imagined. A clean sky day with no one else on the beach. The small houses creating the right amount of structure to compliment the beach. The sunset wasn’t interrupted by the fog bank in the distance either. I was happy with how all my photos came out.

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The edits on these weren’t too difficult either. The day called for the old orange and teal look. An edit I haven’t been a fan of in the past but I thought would work nicely for these photos.

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Not bad for a last minute trip to the beach. And only getting there 20 minutes before the sun dropped below the horizon. It was a much needed trip with a lot on my mind, school coming up and having been trapped inside for a week from being sick.

Rest In Peace Dad (July 6, 1963- January 6, 2019)

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I want to write this to share my experience was over the month that my dad was in the hospital. Ive always turned to art over the most difficult times of my life. For this I thought of placing it all into a photo or maybe a drawing but really there is no other way to put everything that happened in any form other than words. And I won’t talk about any specifics about the actually problems with his health because I want this to expose the feelings that I felt going through it.

When my dad first checked in, it was nothing major. He was as good as I could remember him being. Prior to this, he had just passed his one year anniversary after his lung transplant. Fully out of recovery and back working like before, well at least almost like before. I wasn’t able to visit him during the first few days in the hospital because of school. I was going into finals and had plenty of projects and assignments that I needed to complete.

I had planned to visit him the first Monday after being checked in at the hospital. The Sunday before I had a meeting with a for a group project at my school. I decided to make the drive on up to Stanford to visit him after. I crying all the way on the drive up. I was thinking about last year and visiting him in the hospital before. The year before he had checked in for problems with his breathing due to his pulmonary fibrosis. When I walked in that time, I remember seeing him in the bed and crying. Not sure what was going on and if everything was going to be ok. This single memory played back in my head as I was driving. I remember trying to tell myself that everything was ok, it was a year past his transplant and his lungs were doing amazing. “As good as if they were his own” was was the doctor said to us. When I arrived at the hospital I took my time in the car, to compose myself. After a few minutes I got out to go and visit him in his room. When I arrived I saw him on his bed. Good as ever. No indication of what was to come over the next few weeks.

Over the next week, the original problem improved but some other minor problems arose. But still everything was being treated and there was no major reason to be concerned. Slowly, he went from taking walks every day to taking smaller walks to eventually being stuck in bed for the remainder of his stay. I wasn’t able to visit much over the next week due to my finals and final projects, but I still did when I could.

I don’t think the reality of it really set in until I had to tell someone else. A little after a week after my initial visit he was stuck in bed with his health slowly deteriorating. I remember the doctors coming in various days in a row explaining that the results from their test would come soon and that they were close to an “answer”. They never used the words “solution” or “cure”. Looking back I think it’s because as time passed and his condition got worse they were seeing that everything wasn’t pointing to an answer we’d want to hear. I remember on this reticular Wednesday, things were getting even worse. He spent a lot of time asleep and drowsy at this point. Conversations were short, if any. I called a friend to cancel plans I had for the following day. This was the point where it really set in. I found myself crying more than I thought I would. I think that sharing it with some else made it real and that’s also why until this point I hadn’t shared it with anyone else. Although at the same time it did help knowing someone else knew about it. I had posted various times my location tag being at Stanford, hoping someone would ask why I was there. No one ever asked and in reality I didn’t expect them to.

At the end of the day I decided to drive home through the mountains. Driving here always helped in the past and I thought maybe it could help this time, even if it was just a bit. Below is the only photo I took and posted from that drive home. Taken, edited and posted as I did that day.

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Everything got worse after that. When I went in to visit him the next day his condition was worse. Nothing that hadn’t been going on already but everything getting progressively worse. This was also the last day that I saw him while he was in the right state of mind. This was one of the last goodbyes that I got. As I left the hospital, I knew there was a chance that he would be moved to another area of the hospital, but it would not happen on that day. Late in the night, we got a call, he was moved to the ICU. It was expected news but still hurt. I remembered him being in there after his transplant and I knew this time it wasn’t going to be good.

Throughout this whole month I hated seeing my phone. It seemed like every call, every message was more bad news. I remember feeling a pain in my chest every time I heard my cell phone. Thinking “is this going to be that phone call?” You hope that its anything that brings up your day. And you can’t silence it because you know that it could be something important.

That Friday was one of the worst days. I visited him in the morning and saw him in the ICU for the first time since he had been moved. I remember walking in and not being able to say anything. I couldn’t bring myself to say a word. I couldn’t even bring myself to hold his hand. I was just stuck thinking about everything going on. Thoughts about what was happening and what could happen clouded my mind. I looked at all the medical devices he was hooked up to. All the IVs with their hanging tubes all around his bed. The ICU nurse constantly updating charts on the computer, checking each IV, checking his comfort, and his breathing pattern. I could see that he was much worse than the day before. Hopefully he’d be better now that he had someone checking him and his condition constantly.

After leaving the hospital, I had to go into work. I cried on the way home from the hospital. I didn’t really want to go but I also did’t want anyone to know why. I was just hoping that no one would know. I had only told one other person until then and I was hoping that they didn’t let anyone else know. I composed myself after getting home and then tried to keep myself together on the way, telling myself that I can make it through the shift without breaking down. After walking in, I knew no one knew, and I was relieved. Because for just this shift I would get my mind off of everything. And it took a lot to keep myself composed. I managed to get through, taking lot of moments to hold myself up throughout my shift. It all came back after getting home though.

The following week ended up being the same. With his condition improving but them not telling us anything. Each day got harder to say the lease. My visits became more frequent but did not get easier. When he woke up for the first time after being moved to the ICU, we were finally able to interact with him a bit. Some of them will be difficult for me to forget. With all the IV’s he had, I wasn’t sure exactly what they were giving him to help. I do remember seeing one specific machine to monitor and help his breathing.

His condition continued to improve very slowly to the point where he was moved into another room. He was still being monitored heavily but it was the first time that I felt he would be able to pull through everything. He still wasn’t himself though. Walking in his new room, he could recognize who I was but couldn’t at the same time. Physically he did look better than he had looked when in the ICU. I was only with him for a short time on that day. They were preparing him for more procedures to help him. I don’t think he understood it was me leaving. I didn’t know it at the time but that was the last time I said goodbye where he was able to say it back. But he couldn’t. I was hopeful leaving that day. He seemed to be heading in the right direction when I left. Nothing pointed at it getting worse. But it did get worse.

Later that night, we got a call telling us that he was moved back into the ICU. This time he was move into a clean room to protect him from any further infections. After that, it was never ending bad news. There were less answers and more problems every day. I remember spending Christmas in the hospital. None of us were expecting to spend it there. Every step of the way were had some hope that we would be home “soon”. The next week came and it was just as bad. I remember being there on New Years. That was the last time we took a photo as a family of 5.

I tried to pretend that everything was ok or was going to be ok. A part of me knew it wasn't going to be ok, but even then I had to pretend it was. I didn’t want anyone to ask me how I was. I was afraid. I didn’t want to cry. I was already on the edge of breaking down at any moment. Anyone asking me how everything was or how I was going would just tip me over the edge.

After new years it got to the worst. I had a few days of being ok but then by the end of the first week it was at its worst. It wasn’t the call I was expecting but it was just as equally bad. Finally the bad news. No more pretending, no more hope. My family had talked about what might happen the night before but it hit just as hard. I remember I was at work. I got the call. Hung up then left. On the drive home it was raining. I remember focusing so hard on the small drive I had home. Anything to stop myself from crying. I put on my sunglasses just to cover my eyes to hide my crying as best I could.

Its getting closer to a year since he passed. And its still just as difficult to write about what happened now. We met the night before he passed at the hospital with various family friends. It was a horrible feeling being in the waiting room knowing what was going to happen. I found it hard to cry. That day was the last time I saw him awake. I remember the exact look in his eyes. That was the last I ever got to communicate with him. Just one last look.

My dad passed on a Sunday night. Sunday January 6th 2019. It was the longest day of my life. The feeling of having to disconnect what was keeping him alive was unreal. Knowing that every second was moving me one step closer to losing my dad was explainable. The beginning of that day was similar to how many others before it were. A late start to the day, a long drive to the hospital followed by long waiting periods. I spent that day getting ready like I usually did only that I didn’t know how to act. How do you know how to dress to something like this, how do you know how to do everything as if nothing were going to happen. How do you drive to the hospital knowing what is going to happen.

We had the time set. We knew when it was going to happen. We know what was going to happen and what to expect. We were surrounded by everyone close to us. All of his closest friends were there when they disconnected him from all his medicine. When they finally disconnected him I couldn’t help but think, it’s not like the movies. Its not sudden after he’s disconnected. The room isn’t completely empty with only his family around. The machine doesn’t continue to beep to the beat of his heart. And the room is cold. Not a physical cold but an emotional cold. Something that just takes over any feeling you might have.

Our close ones stayed with us for the first few hours. Once disconnected there is no exact estimate to when it might happen. It could be minutes, hours or days. Sitting there at his bedside I was focused on being there, being completely present. Something in me told me to look at my phone, a feeling of not wanting to be alone. Hoping that someone would send me something, even though this was something I wanted to keep to myself. I don’t know why I tried but I just didn’t know how. To my surprise there was a message, from the only person I chose to confide in. And when I needed it the most. That small hour turned into hours. We were just there waiting.

And when it finally happened, it finally hit me. All of the emotions I had been holding in finally let out. There was no hiding this amount of sadness. No holding it back. The feeling of losing a parent is unparalleled. To lose the person who raised you. Who was there for you. Who would be there for you. All the thoughts of everything he did for me rushed in. And how he wouldn’t be there anymore. He wouldn’t be there with me when I finished my next art piece. To be with me at the movies. On a hike. On my graduation.

I don’t want to talk about the events following his passing. The memorial service, the mass or the funeral. As I said in the beginning, I don’t want to talk about what happened as much as I wanted to talk about how I felt and how I dealt with it.

I think the hardest part was the part that I knew I needed to do. Move forward. Trying to accept what had happened, know it was something completely out of my control and move forward. On the outside it was easy but on the inside it was the hardest thing. It was easy to tell every one that I was doing fine. That everything was ok. But on the inside its still something that catches me all the time. I was used to telling people everything was fine when it wasn’t. I had already been doing it for the past couple of years, even more in the last month. It was easy at this point. To stretch the truth. “We’re doing ok”. “i’m fine'“. Knowing completely that I was not ok. Every time someone would ask would put me on the edge of crying but I wasn’t going to allow myself to do that.

Talking about it was the worst. Sharing it online was close to impossible. Anything that would contribute to the reality that my dad was not longer around felt like something hitting me directly in my chest. Making me stress, hurt, depressed, uneasy and many other feelings. I remember multiple times where a single moment of realization would set me off to long hours of thinking of it with on and off crying. Posting every cemetery visit helped me slowly get used to the idea of talking about it.

As I had mentioned before I a dam of emotions flooded over me after he passed. This continues even now. I was always someone who was able to control their emotions. Able to hold back the sad and moderate the happy. But after this everything hit harder. My sad moments sent me into deeper moments of depression and the happy felt stronger than before. Everything was escalated. Slowly I’ve been trying to even them out and to be able to get a hold of them at the same level that I used to have. Prior to knowing what was going to happen I had decided to start a project where I would track my emotions throughout the year. In this project, I could see visually how my emotions have been stabilizing out throughout the year, but that’s a post in it of its own.

Almost a year later now, I can say that time really does heal all wounds. As difficult of a time as that was, I can say that I do see myself moving forward. Its also taught me to appreciate those around me. The time between him being completely healthy to his passing was less than a month. You never really know what will happen when and all you can do is appreciate what you have while you have it. I remember my dad saying the same thing following his lung transplant. Being so close to losing everything changed how he saw everything around him. I only wish that I would have followed his lead in that year following his transplant and appreciated the time that he had with us more. Only now after his passing can I really look back and learn and really live by all the lessons he tried to teach me.

I wrote this for myself. I’ve written this over 10 months because a lot of the time I didn’t want to think about it because I knew I was close to breaking down. I tried to write in order to process what I went through. It’s been difficult and even now I still refuse to read it. But I’m posting it regardless because it’s shaped me and I want to share parts of my life that have shaped me.